This is the journey of Little e (or Emma). She is on oxygen, has a feeding tube, and has been diagnosed with neuroendocrine cell hyperplasia of infancy (NHI). She also has a history of failure to thrive. She has been through a lot in her life already. Nurses all say she is a rock star! Her therapists all comment on how sweet she is. Both of these, of course, couldn't be more true.
